My niece has been recently diagnosed with Celiac disease. I thought I knew something about it but I didn’t know that what I was about to learn would change the course of my dad’s Lymphoma.
One of the concepts I came across while researching her condition is that Celiac disease has a significant hereditary factor. What I didn’t know is that the possibility of genetically transferring the disease was greater from grandparents to grandsons than from parents to sons.
I also learned that gluten in certain grains actually destroys the villi in the small intestine of Celiacs, which would eventually cause malabsorption of nutrients, resulting in conditions such anemia and low B12, among others. It was then that I connected the dots in respects of the symptoms my dad was having with the celiac diagnosis of my niece (his granddaughter). Could it be that my dad’s continuous low ferritin levels and his low B12 had something to do to my niece’s Celiac condition?
I immediately started reading about Celiac Disease and I learned one big, crushing fact: Celiacs have a nine fold increase in the risk of having intestinal lymphomas, particularly Non-Hogdkin’s Lymphoma, the cancer my dad has.
How come nobody told us anything about this? How come he hasn’t been tested for gluten intolerance with so much evidence associating it with his cancer? The chain of events doesn’t stop here. My dad is getting tested this week to confirm or deny the possibility of Celiac Disease, almost at the same time his granddaughter is getting an endoscopy to find out the extent of the damage this disease caused in her small intestine.
The implications are tremendous. My dad is 70 years old. If he is in fact Celiac it would mean that all the gastric problems he has been dragging since childhood leading to his cancer have a reason to exist: the damage gluten has been causing over the years. It would mean he can lower his risk of recurrence even further by stopping gluten intake altogether. It would also mean we should fire our oncologist for being so incompetent, but then, I can imagine the amount of people that has this king of intestinal lymphoma who might be in the same situation. If you are reading this or if you know anybody who has Non-Hodgkin’s Lymphoma, please consider the role gluten might have in your condition. You oncologist may be completely unaware of such role.
Maybe it’s too late for my dad. He may only be able to put his condition on hold for so long if he reverses his already low gluten intake. I’m grateful he started a macrobiotic diet but I realize that this diet, as good as it is to fight cancer, it is too focused on grains, including glutinous grains. It’s not the right diet for certain cancers. I am grateful my niece got diagnosed so early, though, she has time to lower her risks of malignancies down the road.
But then I learned a more startling fact. 50% of Celiacs are not able to stick to their diets even though they are aware of the devastating consequences of eating gluten. Why? apparently there are certain protein fragments in gluten (and casein, a milk protein!) called peptides that remain inactive in the grains (and dairy products), until we eat them. While we digest this kind of food, our stomach acids and pancreatic secretions are able to free these peptides from their larger protein structures.
Once they are freed, they become highly resistant to enzyme digestion in the intestine. They are basically indigestible. In the case of Celiacs they cause damage because they are attacked by the body’s own immune system. In case of lactose intolerant individuals, they cause inflammation.
But these wheat and dairy peptides don’t just affect these population groups. They have the capability to act as opioids in ALL of us, regarding if we are Celiac/lactose intolerant or not. Their opioid effect is similar to morphine. That’s why they calm your body, they put babies to sleep, they make you drowsy behind the wheel. Some views even suggest that they cause constipation because of the peptides’ sedative effect on your colon. The fact is that they highly influence endorphin receptors in the brain bringing all sorts of mood changes, depression, irritability, withdrawal syndrome, etc. These gluten/lactose peptides are physically addictive, causing strong dependency and other psychological conditions.
Maybe that’s why we are so addicted to bread and cheese, why it is so difficult to give them up. They are in fact so addictive that some authors even suggest reading quit-smoking literature to help give up glutinous-grain dependency. Can you believe it? There are even some authors that go even beyond that and expose the believe that mankind possibly started agriculture by cultivating grains and eating dairy because of the addictive effects of such foods. And some conspiracy-theory authors suggest our food system today is filled with these addictive wheat/dairy peptides so we get hooked on buying all sort of products containing them.
You know what? They may all be right.
So what does this addiction have to do with cancer? Apparently opioids have the capability of reducing the activity of our immune system. In other words, the more opiods you take, in whichever form (even if it is smoking pot or drinking wine), the less your immune system is able to do its job: killing cancer cells. Gluten/dairy might not cause cancer per se in the majority of us, but it does increase our risk to get it in all of us, because they deactivate our immune systems making us literally defenseless against cancer takeover.
If you have cancer, you know anybody who does, or you want to prevent it, stop eating glutinous grains and dairy products so your immune system remains at full potential, if you can break the addiction to them, that is…
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August 21, 2008 at 9:16 pm
I’ve just put a post up regarding Celiac disease. I’m going to read this, thought you might be interested in what I wrote as well. I didn’t know much about this illness until a month ago. Very interesting.
http://www.elyakatz.wordpress.com
Be well, hope your father recovers.
Ellie Katz
August 24, 2008 at 8:52 am
bs”d
Nobody told you because hardly anyone knows. They should…but they don’t. My family has 70 plus years of mysterious ailments of all sorts which can be laid at the feet of this ignorance as well. When we assess the possible damage, it’s heartbreaking, especially with children who we know haven’t been able to reach their full potential…years of growth and development that can’t be recaptured.
This is especially difficult for me, because I’ve been the cook in the family, and have been very conscientious about making sure my family eats the healthiest we can possibly manage. I am very, very well read on the subject of nutrition. If I don’t mind saying, I am ahead of the curve on the subject. In spite of that, it’s obvious to me as I look back, that at least some of my children, suffered from and continue to suffer from mal-absorption/malnutrition.
September 8, 2008 at 6:51 am
It is no longer a “conspiracy theory” if evidence exists to support the theory. The more evidence exists, the higher the probability it is no longer a theory but a likelihood. I truly wish people would stop acting like sheep by using the term “conspiracy theory”. It is used by those who wish to control you by keeping you thinking those who believe evidence exists are conspiracy lovers who should be ridiculed and therefore dismissed.
December 2, 2008 at 10:18 pm
“How come nobody told us?” Indeed. And the next question is: If we know that even small percentages of people (which can translate to large numbers) suffer from a range of life-threatening conditions which are caused by gluten enteropathy, then why don’t we test for that first thing upon diagnosis? Why not address it or rule it out?
I have been dealing with a lung condition that causes fibrosis, which affects the ability to breath and is ultimately fatal. I figured out that I had Celiac on my own. My doctors questioned it. By the time I was tested, I had been off the poison for about two months and the test was negative. Then after a year of being wheat and gluten free, my pulmonary function tests showed significant improvement – significant enough for my physicians to pull me from the transplant list. I may yet have to face that, but I have improved my general health, my lung health, and my quality and perhaps length of life. Not to bad for just giving up some kinds of food.
In Italy all children are tested at age six. This is another good idea. These blood tests are cheap and easy, a not unreasonable investment in good health. Lets get a jump on the problems.
Thanks for your fine blog. I thought I knew a lot about Celiac, but you have really gone the proverbially nine yards, BioHermit. Good work! Everyone should bookmark this blog. Now!
Jamie Dedes
Musing By Moonlight
January 18, 2009 at 1:17 pm
Celiac’s must not eat Wheat, Rye, Barley, and in certain cases Oats. Just eliminating Wheat does not cure the Celiac. I think what you are labeling addiction is actually a reaction because you are not gluten free.
We all have cravings at one time or another. That does define addiction. I think this concept of addiction has been stretched too far in this case.
Would you call a diabetic addicted just for craving sugar? Sometimes a craving is just a craving. Some people lack the self control needed to do what is best for thier bodies.
Until we have actual double blind reasearch studies showing that gluten is addictive, this is just a theory